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superhero run london

Calling all fundraisers! 

A couple of LPUK members are interested in taking part in the Superhero Run in Regents Park, London on 14th May. 

The minimum number of spaces LPUK can register for is 10, and so we have 8 spaces remaining. To make the registration financially viable for LPUK we would like to fill all the spaces before registering, we would like to put this out to all our members and supporters. 

If you would like to take part, please email us at This email address is being protected from spambots. You need JavaScript enabled to view it. before 7th April.

The Superhero Run is accessible to wheelchair users, you can run or walk and dogs are also allowed. More information can be found on the Superhero Run website, or you can contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. 

Residents of Horeston Grange will be holding a Craft and Charity Spring Fair on Sunday 8th April, 2017. 

Funds will be raised for LPUK by Tammy and Steve Harcourt, along with Jenny Ridgewell. 

For more information see below - 

Jennifer Ridgewell fundraiser


giftaidHelp LPUK raise funds by completing and returning a Gift Aid formGift Aid is reclaimed by the charity from the tax you pay for the current tax year. 

For every £1 donated by you LPUK receive 25p from the government. 

Although this doesn't sound much, when received from EVERY donation it soon mounts up to being a substantial amount. You only have to complete the form once, and every donation you make after this will count. 


Huge thank to everyone who attended LPUK’s first ever Murder Mystery Night this weekend, everyone had a great time and we look forward to arranging the next one. 

GDUK LS 2017 logoOnce again Genetic Disorders UK - Leadership Symposium was a fantastic event. Where we heard from a number of different speakers, each giving their own experience on issues which affect our charities and help us support our members. 

The weekend allowed for great networking and gathering some useful advice on running a charity, and developing it in the future. 

As with previous years the weekend started with a welcome dinner on Friday evening, giving members of all charities present chance to network, reconnect with people and gain contacts that could be useful in the future. 

Raise Funds to Raise Awareness

just giving

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