In May, one month before it’s my 79th birthday, Stewart & I will be raising money for Little People UK (LPUK) by walking 65 miles of the Camino de Santiago over seven days. It will be a challenge. we will be averaging some 10 miles every day.
Our very dear seven year old granddaughter, Betsy, has hypochondroplasia, a rare form of dwarfism. She spent the first seven weeks of her life in Brighton's children's hospital having multiple seizures where she stopped breathing, but her dwarfism wasn't diagnosed until after her first birthday. There are over 200 different types of dwarfism, all of which have medical complications to add to the challenges of short stature and disproportionate limbs.
Betsy has a wonderful disposition. She is a very active girl and is whizz on a bike and skates. But life is full of challenges for her and she hates being different. Spending time with other similar to herself and feeling part of the Little People community has been very beneficial and that is where the work of LPUK, and attending their events, has been so important to Betsy and her family.