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There are a number of other organisations that can be useful for people with dwarfism, and their families. To help with associated medical 'issues' or simply for support, the ones below have been suggested by our members: 

Autism Awareness Month

nas logo

Cleft Lip and Palate (CLAPA)


Contact a Family (CAF)

CAF logo

Disability Rights UK

Disability rights



Genetic Alliance

gauk logo

Genetic Disorders UK


Jeans for Genes

Jeans for Genes Day logo


For Equality and Inclusion

MASIS Logo Large  

Visit their website to contact them. 

My Family Our Needs


My Family Our Needs is the go-to place for information on caring for a child with additional needs. The website provides all the information you need to make positive, informed, key lifestyle decisions.

My family Our Needs is also home to The Transition Event and the BAPS (bloody awesome parents) Blog awards.

To contact:

Telephone : 01223 206962

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

NHS Dwarfism page

NHS logo

Rare Disease UK





swanuk logo

SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.

Wrap Pyjama Fairies 

wrap pj fairies



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