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Dear Members,

LPUK is working to improve the hospital experience of members and their families. We have already done work with the Royal College of Midwives and we are now extending this project to include both LP adults in hospital and LP children and their families. These will be two separate pieces of work as children and adult health services are delivered so differently.

Below are links to two surveys; one survey is for parents of children with dwarfism, to learn about your experiences in the hospital and any support afterwards. The second survey is for people with Dwarfism who have experienced stays in hospitals during adulthood.

We will be looking to develop focus groups in the New Year, to help us create some valuable information which we can give to new parents and hospitals, to support future members of the community.

We thank you in advance for completing a questionnaire and we greatly value any responses we get, this will be used to produce a booklet and presentation for both hospital staff and members going into hospital.

If you have any questions about these surveys, please contact, via email - This email address is being protected from spambots. You need JavaScript enabled to view it..

Thank you.

 

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