Last weekend members of Little People UK attended the Genetic Disorders UK Leadership Symposium at Amba Hotel, Charing Cross, for an informative, humbling and inspiring weekend of presentations.
Following on from the success of 2015 the event continued for a second year, starting with a delegates meal on the Friday evening. This gave chance for all the weekends attendees to network and look forward to the day ahead. This year, the keynote speech for the evening was given by John Williams, comedian and author of the blog - 'my son’s not rainman', who gave humorous anecdotes in to his life and his son.
The agenda for Saturday was full of presentations from various viewpoints of genetic disorders, including doctors and professors, healthcare and charity workers, parents and teenagers, including a fantastic presentation from LPUK’s Annabelle Davis, titled - ‘Always Looking Up’. Giving an insight in to the work undertaken by many, to help people with genetic disorders, throughout their whole life. These presentations gave lots of ideas and motivation to all those who attended, to progress in their area to support all of their members and a timeline of the event can be found on their Twitter feed.
LPUK are thankful for receiving a grant from Genetic Disorders UK, which was possible due to the kind generosity of those who donated during Jeans for Genes Day 2015. Once again this will be taking place on 23rd September and we would be hugely grateful if you could support this fantastic cause, not only for LPUK but to also support others with genetic disorders around the UK.
Finally, LPUK thank Genetic Disorders UK, supported by Global Genes, for inviting us to the event for a second year, everyone in attendance valued the information and contacts, and it has motivated us all to continue with our work to support people with dwarfism, and their families.