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Many people within the dwarfism community are receiving Disability Living Allowance (or have received it in the past), to support them with difficulties in their day to day living and mobility issues. Some of you who have been awarded the high rate of the mobility component of Disability Living Allowance may have used it to obtain a car under the Motability Scheme to enable you to be independent.  

Disability Living Allowance (DLA) is being phased out and replaced by Personal Independence Payments (PIP).  

This means that most individuals who are between the ages of 16 and 64 will have their DLA come to an end by late 2017 and will be required to make an application for PIP instead. Some of you may have already received a letter about this, or have already gone through the process of transferring from DLA to PIP.

For more information about PIP, please refer to our DLA/PIPs Transition - Guidebook, which contains details on the claiming process, completing the forms and the appeals process:

At Little People UK we are aware that many of our members have had concerns about the process of transferring from DLA to PIP. We are also aware that some people that have been through the process already, have not been awarded PIP and may have had to challenge or appeal the decision.

We are interested in hearing from people who are currently undergoing the process of transferring from DLA to PIP, or have gone through it already, to see what your experiences have been. Our goal is to gather information from people’s experiences and how the process has impacted, to highlight problem areas that are occurring and how it is impacting on people as individuals and how DLA has helped you with you with supporting managing your condition. We aim to then use this information to produce a report to suggest ways that the claims and appeals process for PIP could be improved to make it fairer and more accountable, through campaigning and discussion with government and the Department for Work and Pensions (DWP).

We would greatly appreciate it if you could take some time to complete a questionnaire about your experiences with PIP. Your help may help to bring about positive change for the dwarfism community.

We ask that you complete this questionnaire anonymously, and avoid using personal, identifiable details in your responses. 

Download questionnaire

Completed questionnaires can be sent to: 

Little People UK,

PO Box 1292, 



Please contact us if you have any questions. 



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