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informationaboutdwarfismconditionsrzdEighty percent of people with dwarfism have average height parents and siblings. Some types of dwarfism are simply a genetic change at conception, which happen to have very visisble results. Some can be inherited genetically from one or both parents. 

A child with dwarfism is born 1 per 25,000 births. There are an estimated 652,000 people with dwarfism in the world, 7,000 in the UK. Very few doctors know much about the various dwarfism conditions. It is important to find a doctor who specialises in dwarfism for ongoing care, especially if there are any medical or orthopaedic complications.

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Commonly Used Acronymns

LP - Little Person/Little People

RG – Restricted Growth

POLP – Parent(s) of a Little Person

AH – Average Height

SENCO – Special Educational Needs Coordinator

LEA – Local Education Authority

TA – Teaching Assistant

EHCP – Educational Health Care Plan

PDSS – Physical Disability Support Service

OT – Occupational Therapist

PT – Physio Therapist

ENT – Ear, Nose, Throat Department

GP – General Practitioner

CSA – Central Sleep Apnea

OSA – Obstructive Sleep Apnea

MRI (scan) – Magnetic Resonance Imaging

CT/CAT (scan) – Computerised (Axial) Tomography (uses x-rays)


GMC – General Medical Council

NHS – National Health Service

NICE – National Institute for Health and Clinical Excellence

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