Due to the current pandemic we are unable to hold our usual events in a safe manner, therefore we are looking to take parts of our event online.
Before we make arrangement for this, we would like to ask our members if this is something they would be interested in?
This week is Jeans for Genes an organisation which has helped so many in the past, with rare genetic conditions, including LPUK.
They offered us support for designing and releasing our Awareness Videos and we look forward to working with them again in the future.
If you would like to fundraise and support, please visit - https://www.jeansforgenesday.org