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LPUK April online events CALENDAR
Join us virtually on Zoom this April at one of our online events -
  • Film Club on Friday 9th April at 6pm
  • Book Club on Sunday 11th April at 4pm
  • Travel Group on Monday 19th April at 6pm
  • Glad Rags on Wednesday 21st April at 7pm
  • Cooking on Tuesday 27th April at 5pm
  • Virtual Quiz every Wednesday at 6pm
If you would like to join, or need more information you can email us at This email address is being protected from spambots. You need JavaScript enabled to view it.
 
Dear Members,
 
As the lockdown is beginning to ease we hope you are all coping with the changes and looking forward to meeting up with LPUK members at events in the not too distant future.
 
The committee has been working very hard during this period of lockdown to bring you a variety of virtual events along with planning for the future.
 
One thing we haven’t been able to arrange during this time is our AGM which we plan to do later this year. This has meant we have had to make some decisions that would normally be made at our AGM this includes replacing elected officers.
 
It’s with sadness that we have to inform you that Ray Griffiths has tendered his resignation as Vice Chair and also from the committee due to personal commitments. As a result of this the committee have temporarily appointed Emma Belcher and Simeon Dyer who will share the role until our next AGM. The committee was unanimous in electing them both to this position.
 
We are truly grateful for all the hard work, passion and commitment Ray has given over many years. His contributions have without doubt helped LPUK to grow and develop into the amazing charity that we all enjoy today.
 
We hope members will support Emma and Simeon as they take on this role, however if anyone has any concerns or questions please email the Charity Administrator.
 
In the meantime, please do join us for one or more of our virtual events and please let us know if you have any ideas for other events/activities.
 
Your Sincerely,
Samantha Davis
Chairperson, Little People UK
 
Thanks
A huge thank you to everyone who has donated and fundraised for LPUK over the past year. We really appreciate your support and it has helped us continue in what has been a difficult year.
 
Whether you've done a raffle, a challenge or simply donated...thank you.
 
Some of our donors have remained anonymous and we want to ensure we are able to thank them too!
 
Over the next 12 months Little People UK are developing a new membership system, which will run more smoothly, enable us to better monitor membership and be more user friendly.
 
For that reason, from today, we are going to suspend membership until 2022. This means that the membership system (new or renewal) will not be available. To cancel any future memberships (i.e. those undertaken by automatic renewal), please see the information below on how to do this, via PayPal. Unfortunately LPUK can not do this for you, therefore you will be required to do this yourself. If you need guidance, please let us know.
 
We will roll out our new membership system in 2022, at which point everyone will have to sign up again for membership. We will release details of this closer to the time, once the new system has been developed.
 
Suspension of the membership system does not prevent you from accessing any of LPUK’s support i.e. emails, virtual sessions, social media and where possible in the current climate, events. All of these will still be open to people with dwarfism, their family and friends, just get in touch.
 
We will continue to send out our monthly newsletter to all current members, if you would like to be added to this mailing list, please email This email address is being protected from spambots. You need JavaScript enabled to view it..
 
Thank you,
Little People UK
 
 
 
Cancelling via PayPal (only for anyone with automatic renewal)
- Login to PayPal (www.paypal.com)
- Click on the cog icon on the upper right-hand corner of your screen to go to the settings page. 
- From the menu bar, click on Payments.
- Under Automatic payments, click Manage automatic payments. 
- Under Automatic Payments (on the left-hand side of your screen), look for Little People UK
- Next to Status, you will see, in green the word ACTIVE.
- Click the Cancel button next to it to cancel your subscription.
 
Recently pharmaceutical companies made significant development in producing treatments for certain dwarfism conditions. As a charity we are not in a position to recommend or endorse any treatment that aims to cure dwarfism or change the physical appearance of people. This is a matter for individual choice.  
 
It is important that the charity continues to remain aware and informed about all medical developments, particularly where there may be improvement in the more debilitating outcomes of conditions, such as spinal stenosis and sleep apnoea.     
 
Little People UK have been monitoring the trials for Vosoritide. A treatment for Achondroplasia by BioMarin. We are aware that there are long term studies within the BioMarin trials which may suggest that Vosoritide could help with medical issues such as stenosis and foreman magnum, however this is yet to be proven and we will await the results of such trials. BioMarin specifies that the treatment is designed for children. We strongly encourage any interested members to seek all medical advice available, to make a fully informed decision if any treatments are proposed to them.
 
We have more recently made aware of other treatments being developed for people with Achondroplasia and for people with Spondyloepiphyseal dysplasia. We are not able to offer more information at the moment.
 
We must stress that we support our members and other members of the dwarfism community with whatever decision they make, it is our ethos not to exclude anyone, regardless, and we hope everyone within the LPUK membership will take this on board, treating everyone with respect and passing no judgement.
 
As a charity we promote and celebrate people with dwarfism, and we aim to show that people with dwarfism can live long and fulfilled lives. We will continue to do this whilst supporting everyone within the dwarfism community and we strive to show that being of shorter stature is a positive.
 
 

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