There are a number of other organisations that can be useful for people with dwarfism, and their families. To help with associated medical ‘issues’ or simply for support, the ones below have been suggested by our members:
Autism Awareness Month
Cleft Lip and Palate (CLAPA)
Contact a Family (CAF)
Disability Rights UK
Dressability
Evenbreak
Genetic Alliance
Genetic Disorders UK
Jeans for Genes
Kidscape
MASIS
For Equality and Inclusion
Visit their website to contact them.
MIND
Mind is a mental health charity in England and Wales. Founded in 1946 as the National Association for Mental Health. Mind offers information and advice to people with mental health problems and lobbies government and local authorities on their behalf.
My Family Our Needs
My Family Our Needs is the go-to place for information on caring for a child with additional needs. The website provides all the information you need to make positive, informed, key lifestyle decisions.
My family Our Needs is also home to The Transition Event and the BAPS (bloody awesome parents) Blog awards.
To contact:
Telephone : 01223 206962
Email: susan.speaight@carechoices.co.uk
NHS Dwarfism page
Rare Disease UK
Rehab Recovery
Website founded to help bring together people who’ve been affected by addiction and mental health issues.
Report It
The police will record any crime as a hate crime where the victim or any other person perceives it was motivated by hostility or prejudice towards their identity
Samaritans
Samaritans is a registered charity aimed at providing emotional support to anyone in emotional distress, struggling to cope or at risk of suicide throughout the United Kingdom and the Republic of Ireland, often through its telephone helpline.
Scope
SWAN UK
SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Wrap Pyjama Fairies
Yoocan
yoocan is the first inspirational community marketplace for people with disabilities and their families. Their mission is to improve the lives of people with disabilities and their families by enabling easy discovery of activities, products, services, and innovation.